“I’m so blown away – never felt more seen by a research team than I did on this webinar. By including patients as partners in research from the ground up the team was able to proactively excel in areas that other study teams have failed. Many thanks to the Scripps Research team and to the Schmidt Initiative for setting the record straight on Long COVID research – decentralized trials are not a luxury, they are a necessity and it can be done!”

Elle Seibert
Public health research consultant, Long COVID patient and community organizer, @gotlongcovid

“I’m finally getting to watch this webinar video from the other week regarding the Scripps Long Covid treatment clinical trials. I’m only halfway through it and already I’m totally blown away by what Julia Moore Vogel has set up. This is like some kind of beautiful dream. This team is so smart and so thoughtful and doing everything right, from what I can see. It’s like everything we would wish for. It’s putting the patients first, and science first. Congratulations, Julia. Honestly, they should put you in charge of RECOVER TLC.”

Rivka

“The fact that it is being looked at is huge. This condition is scary because there are so many symptoms and doctors don’t know what to expect, so collecting this data is so important because it has the potential to be so impactful for so many people.”

Estela Mata
Long COVID user tester

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